A national patient-centered organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases. Provides education on Immune Deficiency diseases and information about support groups, health related advocacy groups, and health care referrals.
Immune Deficiency Foundation
Provider Info
Description:
Provides an online library of information about primary immunodeficiency, including the disease's identifiers, types, diagnostic tools, treatments, and genetic abnormalities.
Eligibility:
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the website or call for more information.
Fees:
No cost
Service Contact Information:
US
Description:
Provides a directory of primary immunodeficiency-related support groups for patients, their caretakers, and loved ones.
Eligibility:
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the website or call for more information.
Fees:
No cost
Service Contact Information:
events.primaryimmune.org/
US
Description:
Provides an advocacy program focused on national, state, and local healthcare and public health policy issues relevant to the primary immunodeficiency community. Advocacy goals include ensuring access to care, providing a voice for those with primary immunodeficiency, expanding screening and diagnosis, and supporting emerging research and therapies.
Eligibility:
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the website or call for more information.
Fees:
No cost
Service Contact Information:
primaryimmune.org/get-involved/advocate
US
Description:
Provides a list of clinicians in a specific geographic area who specialize in treating primary immune deficiency.
Eligibility:
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the website or call for more information.
Fees:
No cost
Service Contact Information:
primaryimmune.org/find-pi-specialist
US