National Brain Tumor Society

Invests in, mobilizes, and unites the brain tumor community to discover a cure, deliver effective treatments, and advocate for patients and caregivers. Services provided included disease/disability information, specialized information and referral, clinical trials, and bereavement and grief support groups.
Description:

Provides comprehensive disease information about brain tumors including basic facts, tumor types, informational videos, and pediatric tumors. It also provides information about the diagnosis and treatment of brain tumors.

Eligibility:
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the website or call for more information.
Fees:
No cost
Service Contact Information:

US

https://braintumor.org/support-services/toolkit/patient-and-care-partner-resources/
Description:

Provides resources to assist people with brain tumors, their families, and their care partners to navigate the challenges of being diagnosed with a brain tumor. A dedicated navigation team is available to provide personalized support.

Eligibility:
People diagnosed with a brain tumor and their loved ones and caretakers.
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Call to speak with a navigator or visit the website.
Fees:
No cost
Service Contact Information:

US

patientnavigator@braintumor.org https://braintumor.org/support-services/toolkit/patient-and-care-partner-resources/
Description:

Provides an online clinical trial finder for people who have been diagnosed with a brain tumor. Clinical trials are studies designed to test the most promising new treatments. People may participate in a clinical trial to try a new and promising treatment method, contribute to future treatment development, or help find a cure. Most clinical trials require a patient to qualify with certain medical criteria.

Eligibility:
Eligibility criteria vary depending on the clinical trial.
Service Hours:
M - F 7 am - 3 pm
Intake Procedure:
Visit the clinical trial finder on the website or call for more information.
Fees:
No cost
Service Contact Information:

US

https://braintumor.org/brain-tumors/diagnosis-treatment/stages-of-treatment/clinical-trial-finder/
Description:

Provides a virtual grief support group for people who have lost a loved one to a brain tumor.

Eligibility:
People who have lost a loved one to a brain tumor
Service Hours:
First Th of every month 5 - 6 pm
Intake Procedure:
Register on the website or call for more information.
Fees:
No cost
Service Contact Information:

US

https://braintumor.org/support-services/support-groups/grief-support/