A nonprofit health organization offering services and community connection for individuals and families affected by bleeding disorders. Offers medical care expense assistance, summer camps, and support groups.
Utah Hemophilia Foundation
Provider Info
Description:
Provides a summer camp experience for children and teens with bleeding disorders. Includes outdoor adventures, creative activities, and community-building. Participants also learn more about their disorders and learn self-infusion techniques and self-advocacy skills. Medical staff is also on-site to attend to any specific health needs of participants.
Eligibility:
Children age 8 - 14 who have hemophilia, von Willebrand disease, or are gene carriers of these disorders, are siblings of a child with one of these disorders, or is a child of an affected parent age 10-14.
Service Hours:
Vary
Intake Procedure:
Visit the website for more information and to apply.
Fees:
$110 - $135 per camper. Full and partial scholarships are available.
Service Contact Information:
hemophiliautah.org/camp-valor-1
US
Description:
Operates several community events and conferences for individuals with bleeding disorders and their families. Groups center around education, empowerment, and connection to others who share the same condition.
Eligibility:
Individuals with bleeding disorders and their families.
Service Hours:
Vary
Intake Procedure:
See website for details and sign up to be a member to gain access to registration.
Fees:
No cost
Service Contact Information:
US
Description:
Provides diverse forms of financial assistance to help individuals facing financial hardship due to a bleeding disorder. Offers medical care expense assistance through the lifeline program, as well as one-time emergency assistance for general living expenses and prescription costs.
Eligibility:
Individuals who are US Citizens or permanent residents, have residency in Utah for at least 12 months, and are diagnosed with a bleeding disorder. Program is for households who pay over 7.5% of the adjusted gross income on insurance and medical expenses.
Service Hours:
24/7
Intake Procedure:
Visit the website, call, or email to apply.
Fees:
No cost
Service Contact Information:
hemophiliautah.org/lifeline-program
US